Wednesday, October 28, 2009

Day 56 more good news

Yesterday was one of those perfect fall days. (As fall as you get in TX) I woke up wanting to snuggle with Bridger because it was so cold. This was a welcome change form the sauna like weather we have been having. I love when the seasons change. The air was crisp and cool with a slight breeze. The sun was shining but a light jacket was needed. We played for hours out side chasing butterflies, seeing how close we could get to the squirrels, and looked in under and around everything looking for spider webs. We had a great time the weather was perfect.

Today we got great news that starting next Monday they will lower Bridger’s dose of Gen graft. It is the medicine that keeps him form getting Graft VS Host disease. He is doing very well. We will just have to watch his skin very closely for any new rashes or anything out of the normal, and his bowels as well. We hope he will do just fine coming off of it. We have no reason to think he won’t. This is all very good news most kids stay on the med for six months (we may too just in a lower dose) and some don’t ever come off of it from what I understand. We another happy thing about today is we got a package form our donor. She sent letters, a bunch of Lighting McQueen stuff. Her 6 year old daughter drew a great picture for Bridger and she sent an angel pin it has a quote about being a special healing angel…. Bridger wanted to put it on right away and wore it all day long in the middle of his color in his t-shirt. He must have for got he was wearing it because later in the evening when he looked in the mirror he grabbed it and then he said in a relived voice “Oh good it’s still here, I just love it”! It was too cute. Bridger got sick this afternoon. By dinner he was feeling much better and ate two peanut butter and honey sandwiches.

Above is the angel pin he obviously loves and below he thought he was so funny putting a hand wipe on his head. He giggled and giggled over it.

3 comments:

  1. I am so glad he had a wonderful birthday!!! What a cute boy! Glad to hear that he is continually making progress! Jana you a such a great mom! And the cake was great! Good job!!!

    ReplyDelete
  2. Prayers again for you adn your med adjustment. We woke up to a brisk 25 this morning but no snow on the ground! Utah beat us for that this year! love you guys!

    ReplyDelete
  3. I love that fall has finally come to Texas! We're about to head out and enjoy it, too.

    ReplyDelete